Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

Starting Your Sarcoma Research

Here are some great places to start your Sarcoma research.

 

Sarcoma Patient Starter Notebook

The Karen Wyckoff Rein in Sarcoma Foundation has created the "Sarcoma Patient Starter Notebook" as a resource for patients and loved one's.

Order or download the Sarcoma Patient Starter Notebook...

 

Association of Cancer Online Resources (ACOR)

A free online lifeline for everyone affected by cancer and related disorders.

 

Sarcoma.net

Website run by Dr. George Demetri, a physician at the Dana Farber Cancer Institute.  Sarcoma.Net was founded to help patients, their loved ones, and health care professionals access sarcoma-specific information that will be understandable, useful, fair, and unbiased.

 

BoneTumor.org

A comprehensive resource for bone tumor information. 

 

Liddy Shriver Sarcoma Initiative

Website includes a learning center with Sarcoma cancer information.

 

OncoLink

A service of Abramson Cancer Center, University of Pennsylvania with comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances.

 

OncoLife Survivorship Care Plan

OncoLink has created an individualized plan of care based on the Institute of Medicine recommendations for cancer survivors. The OncoLife Survivorship Care Plan is free and easy to use program provides cancer survivors with information regarding the health risks they face as a result of cancer therapies.
See Section III, Page 2 for additional information on Survivorship Care plans.
 

 

The Electronic Sarcoma Update Newsletter (ESUN)

A program of the Liddy Shriver Sarcoma Initiative, is an on-line, bi-monthly newsletter that contains articles of interest to patients, caregivers, physicians and nurses.

 

Musculoskeletal Tumor Society - Find a Sarcoma Surgeon

Locate a sarcoma surgeon by City, State, Country